People who Inspire: John Robinson on a journey of hope

John Robinson and Carmel

John Robinson was a registered nurse working in a skilled nursing facility in Massachusetts when something happened that would change his life and the direction of his career.

“There was a patient who had no idea he was dying. His family did, but they were in denial and they weren’t there. He said to me one afternoon, ‘I’m not ready to die today.’ After my shift, I stayed with him and held his hand and prayed,” he said.

John found himself doing the same for other patients. At about the same time, his wife Bobbi’s mother was diagnosed with lung cancer. He commented, “She told us some end of life things she was experiencing.” That’s when he knew he needed to become a hospice nurse.

His journey of the heart led him to the Southwestern Pennsylvania, where Bobbi’s mother lived and where hospice nursing opportunities were abundant.

“As a hospice nurse, I develop a trust and rapport with patients and their families. It’s a holistic approach. It’s pain control. It’s physical, emotional and spiritual. And it makes that journey so much easier to walk. There’s nothing in nursing that can compare,” John said.

And yet, there was still more that he wanted to do.

“Bobbi and I opened a personal care home in our home. Part of the therapy we offered was granting a wish or two or three to the patient. After a couple of years, a sagging economy led us to have to close our doors. I returned to work as a nurse. Bobbi and I wanted to continue granting wishes to adults with life-limiting illnesses, so on August 22, 2007, we officially started a non-profit – Unity, A Journey of Hope,” he remarked.

The first wish came from Carmel, whose breast cancer had spread to her lungs. John said, “She hadn’t been to the ocean in years. All she wanted was to dip her toes in the Atlantic Ocean.” And so they made the journey to Atlantic City, NJ and together, she and John walked through the sand and into the water. Carmel was overjoyed. She passed away three months later.

When Bruce Springsteen was coming to town to perform, Pam, also with breast cancer, had just one wish – to meet him. Bobbi worked the phone for two months, speaking with his office until the wish was secured. On the night of the concert in Pittsburgh, according to John, the group had their seats “in the nosebleed section”.

But that wouldn’t last for long.

John explained, “We were moved up close to the stage. Before Bruce went on, he came over and gave Pam a hug. He signed his ‘Countin’ On A Miracle’ CD for her and he gave her all of his attention for probably three or four minutes.” It was more than enough to make Pam’s wish come true.

With 160 wishes granted so far, John said getting a Pittsburgh Penguins player to the home of Michael, who had Osteosarcoma, was the toughest wish of all to grant and nothing short of a miracle.

“Bobbi called and arranged for a player to come and meet him at his home. I told Michael that the next day a player would be there and he was so happy,” John said.

And then the phone rang. They were told by the organization that a player could not come, after all.

“We were distraught. We didn’t know anyone there. I gave it to God. Bobbi wasn’t giving up and went on to the nhl.com site and saw the Penguins player name of Chris Kunitz. She clicked on it and to her surprise, up came his personal contact information. It was 10:30 at night,” he said.

Bobbi called and Mrs. Kunitz answered. They had a good conversation and two days later Chris was at Michael’s home and spent one hour talking with him.

John remarked, “There was no way his personal contact information should have showed up on the website and the NHL security confirmed that. God was with us.”

The wishes Unity, A Journey of Hope receive are as varied as the people who make them, including Megan’s wish to swim with the dolphins, Thomas’s wish (a former WWII B-24 pilot) to fly one more time, and Grace’s wish to have a family reunion and to meet a former Pittsburgh Pirates player.

John’s touching and emotional experiences in hospice care are captured in his book, “On my Journey Home”, which also serves as a practical guide to what should be done and what to expect at the end of life. “The purpose of the book is to open a conversation. To say the things that need to be said,” he commented.

Over the past 13 years, John said he’s cared for more than 1,600 hospice patients and their families. For his dedication, he was awarded the Northeast Hospice Caregiver Award by Amedisys Hospice two years ago. He was one of four nurses to win the prestigious award out of 17,000 employees.

John “life’s work” really is a journey of hope and is probably best described with this excerpt from his book…

‘You held my hand when I needed support….You comforted me with a much needed hug…You kissed me on the cheek and I felt special…You shared a smile when all seemed lost…You watched me change and never once made me feel different…I will love you forever with all my heart for walking with me, hand in hand, side by side, tear for tear, on my journey home.’

“It’s what it’s all about,” he said.

“People who Inspire” is a new series to shine a spotlight on people who have done extraordinary things. If you have experienced a great adventure, survived a life-threatening illness or trauma, overcome obstacles in achieving a goal, or have made an impact on someone’s life, I’d love to hear from you to share your story. Email me at marymotivates@gmail.com so that we can inspire others to be unstoppable in the pursuit of their goals.

Advertisements

  One thought on “People who Inspire: John Robinson on a journey of hope

  1. June 23, 2013 at 9:21 pm

    Thank you once again Mary I am humbled and honored! It is sentiments like this that keep Bobbi and I going!

    • June 25, 2013 at 3:49 am

      John, thank you and Bobbi for being such an inspiration!

  2. Michelle Hilliard
    June 24, 2013 at 6:22 am

    I am the mom of a young lady with a chromosome disorder. I cant say enough how John and Bobbi Robinson gave my Ashley the night of her life. She has to fight everyday and for one night all that was forgotten. She got to meet Josh Turner and attend concert at Crawford County Fair in 2010. God bless them for all they do! Words could never express what they mean to us.

    • June 25, 2013 at 3:59 am

      Thank you so much, Michelle, for sharing the impact John and Bobbi have made in your daughter Ashley’s life.

  3. October 26, 2015 at 4:01 pm

    Mary reading this beautiful story and realizing it is my life too is so humbling , I am so proud of our crew and how we make the impossible possible sometimes . John truly is one of the most compassionate men I have ever met .In reality my mom was his first hospice pt. and I hated how he made me grow up and face the difficult journey ,how he made me really see and hear her story ,how he helped me stop struggling with my own selfishness holding her here, but I loved how he helped me let go with peace knowing I finally found my big girl pants and wore them well 🙂 thank you Mary for honoring this wonderful human being , my husband , I admit sharing him is hard sometimes but his dedication to Unity and his patients can not be measured

    • October 29, 2015 at 11:00 pm

      Thank you so much, Bobbi. John truly has a special gift. It’s an honor to share his story, which is indeed yours as well. Both of you, along with the Unity crew, have blessed so many lives. Not only the patients, but their families and all those, like me, who are inspired by the work that you do.

  4. Barb Conti
    October 26, 2015 at 8:15 pm

    John you are awesome. You have a very special way of making people happy and feeling comforted even when their walls are crumbling. Pams wish to meet Bruce still makes her smile – her face was about to crack her smile was so big! We still look at the pics and are filled with joy! Thanks for the joy you unselfishly give so many. You are very special; congrats on your well deserved award!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: